Kleefstra Syndrome Awareness Kids Scrunchie

September 17th is Kleefstra Syndrome Awareness Day

For those of you who don’t know my sweet daughter Luna who is my biggest inspiration for my business was diagnosed with this Rare Genetic Disorder January 2023.

She spent 110 days in hospital when she was first born, went septic, had a collapsed lung & had open heart surgery at just 10 weeks old. After being told she wouldn’t make it she defined all odds & proved the Drs wrong! 

She is still oxygen & tube fed dependent but she truly is the definition of a Warrior Princess! 

To help create awareness for Kleefstra Syndrome we have released a product range for this special day & our Kleefstra Warriors! 

30% of all sales will be donated to the Kleefstra Organisation to help children like Luna have a better future! 

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