You live life between hospital
And the outside world
Your life is very isolating
But yet you must be bold
With every needle & procedure
You watch your child cry
It’s breaks your heart over & over
But you never say goodbye
The monitors are constantly beeping
Yet you must stay sane
You go outside to get fresh air
But you feel like your doing it in vain
Your hair is never brushed
It’s tangled & it’s rough
Your life is a complete mess
But yet you must be tough
Things are always up & down
Some days you just want to cave
Some days are full of darkness
But yet you must be brave
You sit inside four walls
You sit inside your head
You sleep on a fold out sofa
But yet you miss your bed
You are your child’s advocate
So up you must speak
The drs may not listen
But yet you can’t be weak
You may have children at home
So you feel torn between two
Mum guilt is the worst
But yet you must make do
You spend your time alone
Or with drs & nurses
This is your life now
But we miss our spouses
Your calendar is always full
It’s no longer for events
It’s full of scribble & times
But now it’s for appointments
You may need to quit your job
To stay at home with your child
You may even lose yourself
But yet you still smile
You hold your child’s hand
So little, so pure, so true
To the world they may not be perfect
But to us we swear black & blue
You learn a new skill set
With all your child’s medical needs
It’s becomes a new way of life
But yet your heart still bleeds
You wish that things were different
That they didn’t have to suffer
But yet you find peace knowing
They will always have their mother
By La Toya Redman